Mid winter resolutions

I have a new doctor. This is significant because I have limped along with a series of absolutely USELESS doctors for the last four years – different every time – in an effort to stay with my clinic which was highly recommended because it is holistic. In an effort to find balance and health care that wasn’t too toxic and blah blah blah my cringing hipster self put up with sub-par health care, lazy disinterested locums and EXTREMELY high fees. (think $145 for 20 minutes one time!).

What finally made my mind up to leave was my last email exchange, with a new receptionist where I tried to book a long overdue appt (my fault not theirs) and they needed to charge me double because it was all new Docs since I was last there and it would be like an ‘initial consultation’.  I should have left the last time I got bloods and they didn’t bother to send me my results until I finally asked for them weeks later. I should have left the millions of times I said to various doctors that I was having issues – visible issues – with my skin, unexplained constant weight gain, stomach pain etc all since going gluten free – and all they did was tell me not eat yet another thing. I should have left when they took my kids off the books because they hadn’t been in in a while (and been able to charge us money) I’m sorry my kids are generally healthy. AND – you guessed it – it would have cost another enrolling fee to get them back on. So I finally did.

And my new doctor is great! In half an hour she did more for me – asked more questions and gave me more explanations – than I’ve had in years at the old place and I finally feel like there might be light on the horizon! Wahay!

So, I’m all revved up and raring to go (sort of, I mean I bathed and napped on Tuesday and nothing else and I have no guilt whatsoever) I am heading out there and running again (3 times this week plus boot camp so there), I’ve quit sugar (again) and am quitting booze (again) AFTER my grrl visits to help me celebrate tattoo finishing session on Saturday. Again, again, again. But you know – with the twin pronged approach with the Doc helping me medically I might actually see results this time! Instead of denying myself ALL THE GOOD THINGS and still feeling crappy which was my downfall last year. And I will try to blog too. Not just about the boring self-centered woe is me coeliac stuff but also about my sub-par parenting and fashion fails. You love it.

Now all I have to do is get through the last few days of the hell of school holidays (my youngest has not raised his voice above a whine in DAYS and this Mamabear is ready to snap) and settle back in to school and maintain good habits. Wish me luck!

Misters

I can’t believe how fast the year feels like it is going all of a sudden!

You may be back at work? You may be still camping up north or similar, or if you are like me you are winding up slowly, getting your head back in the game and starting to put some hours in…

I have been lost in a swirl of house stuff, work stuff and Netflix ha ha. I have watched some bloody GOOD TV in the past couple of weeks and I can highly recommend Fresh Meat to anyone wanting a new Bingewatch – Vod is my new style crush! So cool. Can you guess which one she is? (a hint; it’s not the one in Overalls which may surprise you). I think I watched three seasons in about four days – new season coming out this year! Wahay! (can you tell I only really get to watch TV when I’m on holiday? I’m well behind what everyone is watching – don’t ask me about Making a Murderer).

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Anyways – I wanted to put a good word in for Misters in the city. I don’t need to because they’ve been around for a while and are well established for being GREAT but I finally managed to get there today with my grrl Alissa and it was SUCH a revelation to be able to eat ANYTHING off the menu. They are right in town (don’t tell the GD about my $22.50 parking! Jebus! I won’t be using that Wilsons building again – it cost more than lunch!) and get this – the Chef has Coeliacs! So they run a completely gluten and dairy free kitchen – which means – you know where I’m going – NO RISK WHATSOEVER of cross contamination! I went in cautiously – sometimes the combination of gluten and dairy free can mean lacking a certain taste factor but needn’t have been worried. I highly recommend. You should go there NOW and get something delicious to eat.

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          dscn4195          Misters new menu in copy

 

139 – Tuesday of Coeliac Awareness Week – Rolled oats – safe for Coeliacs or no?

RolledOats   Nutty-oat-biscuits   10092672

The role of oats in a gluten-free diet – has the evidence changed?

Although the addition of oats to a gluten-free diet has nutritional benefits and may introduce more variety in the diet, evidence for their use remains controversial.  The main protein type in oats is different to the gluten found in wheat and other cereals, however, oats do contain smaller amounts of avenin, a protein which is similar to gluten.

Recent evidence suggests that a subgroup of people with coeliac disease are intolerant to pure oats and also that the amount of avenin and the degree to which an immune response is triggered varies between different cultivars of oats. This new research may help explain why earlier research into the safety of oats in people with coeliac disease has had contradictory results. Most studies have also differed in the type and purity of the oats used and in study size and design.

Contamination of oats and oat-containing products with gluten continues to be a problem for researchers and also for people who choose to include oats in their diet. Contamination may occur during planting, harvesting, transport and processing of oats. Many countries are now working to improve agricultural techniques and industrial processes so that an uncontaminated supply of oats and oat products are available.

Current advice in New Zealand (July 2010) recommends that the consumption of oats and oat containing products should be avoided by people with coeliac disease.

“The safety of oats in individuals with coeliac disease has been extensively investigated. Some people with coeliac disease exhibit toxicity to oats. The Clinical Advisory Committee of the Coeliac Research Fund recommends that in Australia and New Zealand, oats should be excluded from a gluten free diet for people with coeliac disease.”’

Best Practice Advocacy Centre of NZ, 2011.

So what that boils down to is that at the moment, Oats are pretty much a no-go for people with Coeliac disease – even if you buy the really fucking expensive ones from the health food store that have been imported from ‘Murica and are plastered with ‘gluten free’ all over them. Because of the Avenin.

Which means that people with coeliacs and people baking for people with coeliacs need to think outside the box for chewy, tasty recipe fillers. I have a good brown rice porridge recipe that I use (and have posted before) and I know that some folks use both quinoa flakes and rice flakes in baking. I have not tried these but have them on my (long) list of things to do in the near future.

To sum up; People with Coeliac disease can’t eat Wheat, Rye, Barley or OATS.

And I miss porridge.

Day 70 – a cry for help

huge-cat

Last night I ate so much fruit that I was in agony. I had told myself that buying nectarines and plums on the way home was better than buying chocolate or wine – which was what I wanted – and that I was doing myself a favour. I purposefully ignored the high fructose factor because I was feeling sorry for myself and feeling like I was missing out. I was tired and needed something to energise me. I told myself that actually, I have been not eating certain things for so long that my gut is probs sweet bro, eat away, you’ll be fine. I am very easily persuaded. And I am also very convincing. It’s a terrible combination.

Within half an hour I looked 7 months pregnant under my dress, I had to go lie down because I was hurting so bad and I was worried that I had actually done permanent damage.

All because my immune system can’t recognise food for what it is and attacks things randomly causing me pain and discomfort. Because my gut lining is so damaged from years of gluten exposure that even though I had my diagnosis of CD and went GF two years ago it might as well have been yesterday for all that it has healed. And because I knew all of this and still put something inside me that was potentially going to do me damage.

I beat myself up all night about it and then went out in a panic to find lunch today in my thirty minute break and bought more fruit. What the ACTUAL fuck man. The definition of insanity is repeating the same mistake twice and expecting different results. I am doing this to myself. Compulsively.

I need to stop eating fruit and start having a lie down. I need to take a year off work and travel around the hot places of the world, not eating fruit, taking photographs and somehow being paid for it. I need the grumpy Dutchman to stage an intervention and take all of the fruit out of the house. I need to stop eating in the car. I need to figure out how to get my kids to stay in their own beds for the whole night. I need to figure out how to jam three more hours in my day – preferably between classes – so I can do some actual Deaning while I am at school and not try to fit it in around the edges. I need.

I need.

I need WINE.

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Day 57 – new books in the mail!

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My GAPS book arrived and my bedside ‘library’ is getting full! I need to get started on this lot quick smart. I am feeling in the need for some focus so I think I will start with the GAPS book, gut healing and psychology stuff, notice I got a GAPS cookbook to go with it? Always be prepared – like a good girl guide.

This week has felt long and there is still one day to go. I was still feeling the effects of being glutened today so my brain is foggy as and my body is still slow and achey. The mid-term blues are kicking in for my girls – the wonders of the fresh start and the new term are wearing off and I spent a lot of time doling out hugs and tissues today. My office mate has a theory that they the whole school ‘syncs up’ and they all get PMS-y at the same time. Cadbury should just bulk deliver at this time. They would make a fucking killing.

It’s been the kind of day where you just want to come home and curl up with a glass of wine and some ‘alone time’. I was gifted a Whittakers %70 dark and a coke zero today. It took every ounce of my willpower to not eat them right there and then and I am pleased to say that they are still in my office fridge – I am hoping I can re-gift them without offense. What has the world come to when I am giving away chocolate? It’s unnatural.

It is getting tougher to not just go for comfort food though. Harder to resist just one small flat white when I am shattered in the morning. I am so tired that I want to use food to prop me up but I know that it is mostly from being glutened and getting used to the term being full swing again. So SLEEP is in order. And finding some time to read and get my ass educated about GAPS.

So what I need is time then. Ha! Tell ‘er she’s dreamin.

Day 55 – Gluten free fad-ness is killing me

Artist - Alexandra Berger
Artist – Alexandra Berger

Ranting out loud (in my head) at my computer. Or rather – people on the interwebs. I follow the Coeliac disease NZ page and a couple of others, and mostly they are great places to get advice, commiserate and get good safe restaurant recommendations. BUT it amazes me how often people ask for help or advice and then get mad because you are not telling them that actually it would be fine to have just one pie a day because that much gluten can’t hurt can it? If you have coeliac disease it will hurt you. Or when you suggest that making food themselves from yummy ingredients would be easier than surviving on GF cake from cafes – that is probably contaminated anyway by the way. Bitch got mad at me because I suggested she cooks! I don’t know her life but I do know that boiling an egg isn’t rocket science. I only had to ring my mum the first 3 maybe 4 times the first time I did it? and now I’m practically an expert. So there.

Or – and this is really annoying – when someone finds out I am gluten-free from the coeliacs and then they say ‘I don’t eat gluten either – I am trying to lose weight’. REALLY?! ARE YOU TRYING TO LOSE WEIGHT ARE YOU?!

I am all for not eating stuff that makes you feel like shite. Have you seen my list of no-gos ffs? And I have every respect for those folks that are doing what they can to feel the best they can feel. BUT don’t go gluten-free ‘for your weight’ and then eat all the packaged, sugar-free, chemical shit storm gluten-free food in the stupidmarket and then complain about getting fat. Processed food is processed food. When they take out the gluten they add sugar and salt and other ‘filler’s to make it taste ‘normal’ Don’t be fooled dude.

Especially don’t come to a work function and hoover up all the gluten-free food that they thoughtfully got in – leaving none for the real foodtards, and then go over to the ‘normals’ food and just have one because it ‘won’t hurt’. Because it won’t hurt you. And you ate all my fucking grapes and now I hate you.

Shall I tell you what I have learned about cafes and restaurant gluten free-ness? I have learned that even if the food has gluten-free ingredients, if it is cooked on the same tray as gluteny food it will be contaminated. If it is stored in the same display as the other food it is likely to be contaminated. (It can be okay if they store it at the top so nothing can drop crumbs on it). If they don’t have gluten-free specific tongs, the food is contaminated. If they don’t have gluten-free cutting boards or utensils out the back then the food is likely to be contaminated. Even if you order gluten-free toast; if they cook it in the same toaster it is definitely contaminated.

I have learned that if you ask these questions cafe staff quickly become sick of you and either a. lie to shut you up or b. make it clear they want you to fuck off. And that’s fair enough really. They can only go so far to accommodate. I have learned that it is easier to not eat out very often.

And although I think that the ‘trend’ towards gluten-free eating has meant that there are heaps of yummy things on the market now that are safe for me to eat and although I agree to some extent that coeliacs ‘should be grateful’ that there are more options out there for us, I am conscious that every time I say that I need to have gluten-free food I cringe a little in case someone thinks this is my ‘lifestyle choice’. It would be amazing to get up tomorrow and be able to eat anything I like.

I am not an angel. I know that if I could – and knew it wouldn’t hurt me – I would eat pretty randomly. It takes a lot of organisation and effort to be able to eat at every meal, to be prepared for each day – and I am not too often – and to make sure that I am getting everything I need from my food. It is tiring when the rest of life is demanding attention too. I guess that’s why I get so irritated with the foodie fads.

I ALSO KNOW HOW ANNOYING IT IS TO HANG OUT WITH ME. My very thoughtful friends and family go to great lengths to make me food or treats and they are so disappointed when I can’t eat them because of some shit. I’m sorry.

GF for life bitches.

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Day 51 – TGIF

Grumpy cat is happy on friday

Friday friday, thank fuck it’s Friday! And because things aren’t still completely up and running at work I got to leave early-ish at 4. I was driving home and thinking, beautiful day; glass of wine by myself out the back in the sun before all the boys get home.

Oh yeah. That’s right. I don’t drink this year.

And actually, I had such a bad ear-ache from the too cold air-con at work that when I thought about it I realised that I didn’t actually want a glass of wine – I wanted a lie-down. Progress. If it had been last year, I would have come home and poured a cold, crispy, refreshing glass of Sav – and instantly my headache would have gotten worse. Instead – and I can’t believe I’m admitting this – I lay down, downed two full glasses of water and cruised around on the interwebs for a while… My ear-ache receded dramatically. Who’da thunk it?

Have you seen ‘The Katering Show‘? Oh my god. These women get me. I lost an hour of my life watching them and laughed and laughed and laughed. Even the GD cracked a smile. Kate McCartney is an australian version of me. Watch it.

Because it was friday and we are lazy, we got fish and chips for dinner. FYI Gluten-free fish and chips leave you feeling just as bloated and greasy as non gluten-free fish and chips. I sent the (very) grumpy Dutchman to The Ancient Mariner in Mt Eden because they have a dedicated gluten-free fryer. I told myself that it would be different this time. That I wouldn’t regret it because they understand me. They GET cross-contamination. I lied.

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Looking forward to a kid-free day tomorrow doing errands – I might finally post the xmas parcels to the nieces and nephews! They’ll have given up waiting so it’ll be an even more pleasant surprise… at least that’s what I’m telling myself.

Day 50 – DH

As I lay down this afternoon to get my lashes filled, I instinctively put my hand up to shield my forehead and eyebrows and apologised to the lovely woman about how ‘gross’ I was. She naturally said ‘what are you talking about?’ in that wonderful way that beauty professionals have – no matter what state you present in – they tell you you are lovely, but I still felt self-conscious.

This is weird in itself because – it really is true what people tell you – the older I get, the better I feel about myself. These days I can leave the house with hair dishevelled, legs fuzzy, no make-up (I never wear make-up these days), trackies and a singlet and I still feel the hottest thing since sliced bread. This would not have been true ten years ago. Ten years ago I would have slunk out as if apologetic for my existence – and to feel ‘ok’ enough to feel attractive would have depended heavily on time of the month, gym up keep and careful prep. I based my worth on what other folks thought of me and that was a constant slippery slope of trying to please everyone around me. I am def enjoying the freedom and confidence that comes with being older, more experienced, and just not giving a shit what other folks think anymore. I am either going to be really obnoxious at 90 or really rock and roll if I keep going at this rate ha ha.

And yet. Since my Coeliacs diagnosis I have been Gluten free for two and bit years, and like my ‘about’ page says, I have felt worse since. I put on weight no matter what I do, I suddenly struggled with stabbing and random gut ache most days but what had me down most was my skin and it’s seemingly sudden complete break down. I have always have ‘sensitive’ skin. I have never worn foundation or moisturiser on my skin because without fail I break out within an hour of putting it on. I don’t like the way it feels – like my face is suffocating.

In the last ten years or so I have gotten very small blisters all over my hands when stressed or in the darkroom too much. I had alway assumed it was because I had reached a ‘maximum’ level of toxicity in my system. Nearly 20 years in the darkroom, trailing my hands through chemicals and my art school antics, I figured had screwed me and made me sensitive to the world.

Since going GF though, not only do my hands still have their moments – and it is definitely stress related BUT now my face seems to be the hotspot. All the skin on my eyebrows, forehead, chin and around my nose peels off almost daily. It sounds like it looks gruesome – and it doesn’t thank god. I go bright red in an instant – and take ages to get ‘normal’ again (I can’t wear lipstick anymore because my face always clashes with the colour). I can’t walk ten metres without looking like I ran a marathon. My face is itchy and scratchy and I pick and scratch like a meth addict. It makes me paranoid when I am talking to anyone up close, and I have tried SO many things to ‘fix’ it. You name it I have tried it. Giving up Dairy is meant to significantly improve it and it seemed to be doing so for a wee while, but now it’s come back with a vengeance.

I use gluten-free shampoo and conditioner and stopped washing my face with anything but warm water and good clean flannel. I take Zinc, and fish oil and eat lots of good healthy fats. And yet.

There is something called ‘Dermatitis Herpetiformis’ which is associated with Coeliacs, (not herpes or dermatitis according my confusing source but rather a chronic ‘skin condition’ related to damage in the gut);  ‘Like coeliac disease, DH is treated with a lifelong gluten-free diet. It may take about six months to achieve moderate improvement in the skin condition and up to two years or more to achieve total control by diet alone, meaning that the skin response is much slower compared to the healing of the intestines with coeliac disease‘. This does not fill me with joy. And to be honest I don’t think this is my issue. My skin is not covered in small liquid filled blisters – and DH presents, er, lower down Legs, bum etc), usually after a glutening. Not on the face.

My skin is fucked all the time. I flake off on to anything I am wearing and am constantly conscious of my red face. I wear a fringe – not only because it looks hot duh – but because it covers my forehead and it’s sad, peeling, dry skin.

So, although my gut feels better, I don’t look as pregnant anymore and I feel like my weight is ‘settling’ since I went everything-free, I am still waiting to see an improvement in my skin. Although I am doing this ‘year of health’ to heal my gut, I would very much like to see my face settle down to a nice pasty, pakeha-white and not look sunburned or flushed all the time.

Wow downer man. Sorry peeps.

Day 45 – A woman on the edge.

Picture in your mind’s eye a woman sitting on her couch. She has her eyes firmly on her laptop, one arm stroking the cat (who, in the absence of the male human has deigned to purr for the female), the other scrolling through her newsfeed.

Notice the lollies strewn all over lounge the floor in front of her. Casualties in a day that included both a child’s birthday party and visiting multiple Grandparents, the children had their fill – they couldn’t take any more sugar.

Now look closer; at her tense shoulders. Her fixed gaze – her eyes don’t stray from the laptop screen. She is stroking the cat in firm, fast downward movements, more of a ‘sports massage’ than an affectionate thing. The chicken soup she made earlier is cooling next to her – too hot to eat yet but she tries it every few minutes or so.

The lollies – fruit bursts, minties, milkshakes and jellybeans – are ALL gluten free. This she knows. Sugar is the issue here. They are strictly a no go area. And yet…

Being gluten free is not a choice. Coeliac disease is a permanent, autoimmune disorder caused by an intolerance to gluten which is found in wheat, barley, oats and rye. This intolerance to gluten causes the body to produce antibodies which damage the lining of the small bowel and make it impossible for the body to absorb vitamins, minerals and other nutrients from food. The damage is immediate and can be severe in it’s physical manifestation. Because I am a silent coeliac I often don’t know it’s happening.

Giving up sugar on the other hand was a choice, to help my gut, to heal my gut and to ‘un-complicate’ this process. I know that high fructose fruit and veges are doing me damage as well and feel the effects straight away – and yet…

It has been a good day. But sometimes homemade chicken soup doesn’t quite cut it you know?

Day eleven, sugar hangover and new food

Morning, I mean afternoon – no actually it’s the evening isn’t it? My head has been foggy today and I don’t know if it’s because I stayed up late (11pm shocking!) or I woke up late (7.30am – even more shocking!). I am not a late night gal nor am I a late riser and I am blaming this weird sleeping squarely on the sugar high I got from my delicious dessert last night. Also today I have smashed 2 nectarines and a whole bunch of strawberries so I guess the sugar cravings have kicked back in…. Back to square one and cold turkey on the fruit tomorrow.

Oh well my fault. We met one of my sisters mates for lunch today, she is good fun and the cafe we went to did the whole ‘we can make any meal GF’ for you thing which was great. They faltered a bit when I asked if that was coeliac safe (two different things believe me) but were very good with my ‘special needs’ ha ha. I ended up having poached eggs on their own GF bread, GF bacon and baby spinach which was delicious and kept me full (albeit I slipped some strawb’s in there) until dinner time.

The weather is not amazing today – raining on and off – grey skies – which always affects my mood – makes me irritable and snappy – and I get Monica-styles white girl afro too… s’not pretty or cute.

monica geller playing table tennis

In other news I have nearly finished another book – fuck I LOVE hours and hours of uninterrupted reading – I was such a geek when I was younger and unencumbered, I’d just read and read and read…. and (maybe) unrelated; I have bought my two little lads their ‘Mummies-been-away-and-didn’t-miss-you-at-all-but-I-still-love-you-really’ guilt presents and sent postcards, but there isn’t a lot of exercise going on… Yoga and boot camp will be ON when I get home. Damnit. NO remember – it’s good for my soul and stress and shit…. No really it is!

Kris made us delicious Larb Gai for dinner tonight and we ate it wrapped in lettuce leaves – must try this for other food – it was delicious and satisfying. She said it was super easy to make so I will be looking up versions of it when I get home to try with the lads and the GD. YUM. And also eating other stuff wrapped in lettuce leaves (although technically lettuce leaves are raw greens and I should be avoiding them – but no sore tummy yet from raw veges or chillies so fingers crossed!)

Three more days and I go home to my boys, I guess I do miss little lad cuddles in the morning – I even missed the GD today when I was mooching round the shops and found some records (but don’t tell him that!).